Brecken's Story

8-19-09

Update on Brecken's visit to Children's today.

Brecken had Botox in his arms and hamstrings, he also had Phenol blocker injections into his inner thighs. The injections kill the nerves at the site of the injections. This prevents the brain from telling the muscles to contract. The nerves will reroute themselves over the next few months and then his muscles will start to tighten up again and then it's time for more injections. He also had dental work done. he had 4 crowns done and 3 cavities filled and the muscle under his tongue and the one above his front teeth were laser cut to help with the range of motion of his tongue and top lip. He also had his eye teeth shaved down as he has been biting the inside of his cheek.

They had given him 2 doses of Morphine and it still did not help with the pain, so they finally let us give him his lorazepam and he finally calmed down. He was crying so hard that his lips were turning blue. Once his lorazepam kicked in we were able to go home. We were all so wore out from the aftermath that we all took a nap and know Brecken is just happy as a clam!!!

I was really worried that he was going to be in painfor a few days, but he seems fine, but we'll just keep up with the Tylenol for a few days.

We had Brecken's birthday Party last Sunday and it was great! All the kids had a blast swimming in the pool! Thank you again to everyone for coming and the wonderful gifts. Brecken will thoroughly enjoy all his new movies!!!